(1) DEFINITIONS. In this section: (a) “Comprehensive hemophilia treatment center” means a center, and its satellite facilities, approved by the department, which provide services, including development of the maintenance program, to persons with hemophilia and other related congenital bleeding disorders. (c) “Hemophilia” means a bleeding disorder resulting from a genetically determined clotting factor abnormality or deficiency. (d) “Home care” means the self-infusion of a clotting factor on an outpatient basis by the patient or the infusion of a clotting factor to a patient on an outpatient basis by a person trained in such procedures. (e) “Maintenance program” means the individual’s therapeutic and treatment regimen, including medical, dental, social and vocational rehabilitation including home health care. (f) “Net worth” means the sum of the value of liquid assets, real property, after excluding the first $10,000 of the full value of the home derived by dividing the assessed value by the assessment ratio of the taxation district. (g) “Physician director” means the medical director of the comprehensive hemophilia treatment center which is directly responsible for an individual’s maintenance program. (2) ASSISTANCE PROGRAM. From the appropriation accounts under s. 20.435 (4) (e) and (je), the department shall establish a program of financial assistance to persons suffering from hemophilia and other related congenital bleeding disorders. The program shall assist such persons to purchase the blood derivatives and supplies necessary for home care. The program shall be administered through the comprehensive hemophilia treatment centers. (4) ELIGIBILITY. Any permanent resident of this state who suffers from hemophilia or other related congenital bleeding disorder may participate in the program if that person meets the requirements of this section and s. 49.687 and the standards set by rule under this section and s. 49.687. The person shall enter into an agreement with the comprehensive hemophilia treatment center for a maintenance program to be followed by that person as a condition for continued eligibility. The physician director or a designee shall, at least once in each 6-month period, review the maintenance program and verify that the person is complying with the program. (5) RECOVERY FROM OTHER SOURCES. The department is responsible for payments for blood products and supplies used in home care by persons participating in the program. The department may enter into agreements with comprehensive hemophilia treatment centers under which the treatment center assumes the responsibility for recovery of the payments from a 3rd party, including any insurer. (6) PAYMENTS. (a) The department shall, by rule, establish a reasonable cost for blood products and supplies used in home care as a basis of reimbursement under this section. (b) Reimbursement shall not be made under this section for any blood products or supplies that are not purchased from or provided by a comprehensive hemophilia treatment center, or a source approved by the treatment center. Reimbursement shall not be made under this section for any portion of the costs of blood products or supplies that are payable under any other state, federal, or other health care coverage program under which the person is covered, including a health care coverage program specified by rule under s. 49.687 (1m), or under any grant, contract, or other contractual arrangement. (c) The reasonable cost, determined under par. (a), of blood products and supplies used in home care for which reimbursement is not prohibited under par. (b), shall be reimbursed under this section after deduction of the patient’s liability, determined under sub. (7). (7) PATIENT’S LIABILITY. (a) 1. The percentage of the patient’s liability for the reasonable costs for blood products and supplies which are determined to be eligible for reimbursement under sub. (6) shall be based upon the income and the size of the person’s family unit, according to standards to be established by the department under s. 49.687. 2. In determining income, only the income of the patient and persons responsible for the patient’s support under s. 49.90 may be considered. 4. In determining family size, only persons who are related to the patient as parent, spouse, legal dependent or, if under the age of 18, as brother or sister may be considered. 5. In determining net worth, only the net worth of the patient and persons responsible for the patient’s support under s. 49.90 will be considered. (b) Individual liability shall be determined at the time of initial treatment and shall be redetermined annually or upon the patient’s notification to the department of a change in family size or financial condition. (8) DEPARTMENT’S DUTIES. The department shall: (a) Extend financial assistance under this section to eligible persons suffering from hemophilia or other related congenital bleeding disorders. (b) Employ administrative personnel to implement this section. (c) Promulgate all rules necessary to implement this section.
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