(1) As used in this section: (a) "Hemophilia services" means a program for medical care, including the costs of blood transfusions, and the use of blood derivatives and blood clotting factors. (b) "Person with a bleeding disorder" means a person: (i) who is medically diagnosed with hemophilia or a bleeding disorder; (ii) who is not eligible for Medicaid or the Children's Health Insurance Program; and (iii) who meets one or more of the following: (A) the person's insurance coverage excludes coverage for hemophilia services; (B) the person has exceeded the person's insurance plan's annual maximum benefits; (C) the person has exceeded the person's annual or lifetime maximum benefits payable under private health insurance; or (D) the premiums for the person's private insurance coverage, or cost sharing under private coverage, are greater than a percentage of the person's annual adjusted gross income as established by the department by administrative rule. (2) (a) Within appropriations specified by the Legislature for this purpose, the department shall make grants to public and nonprofit entities who assist persons with bleeding disorders with the cost of obtaining hemophilia services or the cost of insurance premiums for coverage of hemophilia services. (b) Applicants for grants under this section: (i) shall be submitted to the department in writing; and (ii) shall comply with Subsection (3). (3) Applications for grants under this section shall include: (a) a statement of specific, measurable objectives, and the methods to be used to assess the achievement of those objectives; (b) a description of the personnel responsible for carrying out the activities of the grant along with a statement justifying the use of any grant funds for the personnel; (c) letters and other forms of evidence showing that efforts have been made to secure financial and professional assistance and support for the services to be provided under the grant; (d) a list of services to be provided by the applicant; (e) the schedule of fees to be charged by the applicant; and (f) other provisions as determined by the department. (4) The department may accept grants, gifts, and donations of money or property for use by the grant program. (5) The department shall establish rules in accordance with Title 63G, Chapter 3, Utah Administrative Rulemaking Act, governing the application form, process, and criteria it will use in awarding grants under this section. Renumbered and Amended by Chapter 307, 2023 General Session
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