(1) To ensure proper testing and follow-up care and increase public awareness of the newborn bloodspot screening program described in ORS 433.288, the Oregon Health Authority shall, subject to available resources, implement: (a) An educational program for health care providers, expectant parents, parents or guardians of infants and the general public. (b) A follow-up monitoring program to improve long-term care of individuals with medical conditions identified through screening. (2) The educational program must: (a) Provide information on the medical conditions for which infants are screened under the newborn bloodspot screening program; (b) Provide information on the importance of newborn bloodspot screening to prevent or mitigate the harmful health effects of medical conditions for which infants are screened; and (c) If a newborn bloodspot screening detects a medical condition for an infant, provide the parents or guardians of the infant information on organizations that serve populations impacted by the medical condition.
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