(a) In this section, "Steering Committee" means the Statewide Steering Committee on Sickle Cell Disease. (b) There is a Statewide Steering Committee on Sickle Cell Disease. (c) The Steering Committee shall include representatives from: (1) Local and national groups that advocate for individuals with sickle cell disease; (2) Interest and support groups for individuals with sickle cell disease; (3) Community and consumer groups; (4) Academic and private clinical settings with knowledge and experience caring for adults with sickle cell disease; (5) Area hospitals caring for individuals with sickle cell disease; and (6) Pediatric clinics that care for children with sickle cell disease. (d) The Steering Committee shall: (1) Establish institution and community partnerships; (2) Establish a statewide network of stakeholders who care for individuals with sickle cell disease; (3) Educate individuals with sickle cell disease, the public, and health care providers about the State options for care of sickle cell disease; and (4) Identify funding sources for implementing or supporting the actions, studies, policies, regulations, or laws recommended by the Steering Committee, including funding from: (i) State, federal, and local government sources; and (ii) Private sources.
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