By January 1, 2014, and every 3 years thereafter, the Department shall prepare a State Alzheimer's Disease Assistance Plan in consultation with the Advisory Committee to guide research, diagnosis, referral and treatment services within each service area described by the Department. To ensure meaningful input by stakeholders into the plan, the Department or members of the General Assembly or other interested parties may hold public hearings at locations throughout the State for input by consumers and providers of care. The Department or members of the General Assembly or other interested parties may also utilize technological means or work with advocacy organizations that have technological capability, such as Webcasts or online surveys, to gather feedback on recommendations from persons and families affected by Alzheimer's disease and the general public. State agencies with programs serving the population impacted by Alzheimer's may also present testimony at one of the State hearings to specify how they are meeting the needs of people with Alzheimer's. Various stakeholders, including related consumer organizations or advocacy organizations as well as individuals with Alzheimer's disease or a related disorder and caregivers of such individuals, may also be invited to provide public comment. The results of any public hearings held pursuant to this Section shall be presented to the Department in a format as determined by the Department to be included in the State Alzheimer's Disease Assistance Plan. The plan shall incorporate any testimony that may be offered on the following topics: (1) An assessment of the current and future impact of Alzheimer's disease on Illinois residents. (2) An examination of the existing industries, services, and resources addressing the needs of persons with Alzheimer's, their families, and caregivers. (3) The development of a strategy to mobilize a State response to this public health crisis. (4) Trends in State Alzheimer's population and needs, including the changing population with dementia, including, but not limited to, the use of State surveillance data of persons with Alzheimer's disease for purposes of having proper estimates of the number of persons in the State with Alzheimer's disease. (5) The current economic impact of Alzheimer's disease and related disorders for the State, including the cost of direct and indirect care paid by Medicaid, other federal-State funded programs, the estimated direct and indirect costs of family caregiving, and the cost of Alzheimer's disease to businesses in Illinois. (6) Existing services, resources, and capacity, including, but not limited to, the: (a) type, cost, and availability of dementia services in this State; (b) dementia-specific training requirements for paid professionals at any level and in any provider setting (institutional or home or community based) engaged in the care of persons with dementia; (c) quality care measures instituted in this State for long-term care facilities; assisted living facilities; supportive living facilities; or any other residential program available for the care of persons with dementia; (d) capacity of public safety and law enforcement to respond to persons with Alzheimer's; (e) availability of and amount spent by the State on home and community-based resources for persons with Alzheimer's and related disorders and the availability of State-supported respite care to assist families; (f) inventory of all residential options for individuals with dementia in this State, including, but not limited to, long-term special care units for people with dementia, assisted living units for dementia, and supportive living units for dementia; (g) inventory of geriatric-psychiatric units for persons with behavior disorders associated with Alzheimer's and related disorders; (h) specific efforts of State agencies directed towards persons with Alzheimer's disease and related disorders and the agencies' estimation of resources that will be needed to meet an increased demand; and (i) level of State support of Alzheimer's research through Illinois universities or other institutions and the results of such investments reflected both in research outcomes and subsequent federal investment in research in Illinois. (7) Recommended changes or additions to State policies, including, but not limited to, directions for the provision of clear and coordinated services and supports to persons and families living with Alzheimer's and related disorders and strategies to address any identified gaps in services. The plan shall also indicate the number of persons served, the extent of services provided, and the resources required for the delivery of services through the ADA networks established under this Act. Such plan shall identify and describe the duties and accomplishments of each Regional ADA Center, the primary Alzheimer's providers and other various providers of service within the ADA network of the described service area. The Department shall consult with and take into consideration the plans of local and State comprehensive health planning agencies recognized under the Comprehensive Health Planning Act, as well as recommendations regarding Alzheimer's disease and related disorders that may be included in the State Health Improvement Plan. of Alzheimer's disease on Illinois residents. services, and resources addressing the needs of persons with Alzheimer's, their families, and caregivers. response to this public health crisis. including the changing population with dementia, including, but not limited to, the use of State surveillance data of persons with Alzheimer's disease for purposes of having proper estimates of the number of persons in the State with Alzheimer's disease. disease and related disorders for the State, including the cost of direct and indirect care paid by Medicaid, other federal-State funded programs, the estimated direct and indirect costs of family caregiving, and the cost of Alzheimer's disease to businesses in Illinois. including, but not limited to, the: services in this State; paid professionals at any level and in any provider setting (institutional or home or community based) engaged in the care of persons with dementia; State for long-term care facilities; assisted living facilities; supportive living facilities; or any other residential program available for the care of persons with dementia; to respond to persons with Alzheimer's; on home and community-based resources for persons with Alzheimer's and related disorders and the availability of State-supported respite care to assist families; individuals with dementia in this State, including, but not limited to, long-term special care units for people with dementia, assisted living units for dementia, and supportive living units for dementia; persons with behavior disorders associated with Alzheimer's and related disorders; towards persons with Alzheimer's disease and related disorders and the agencies' estimation of resources that will be needed to meet an increased demand; and research through Illinois universities or other institutions and the results of such investments reflected both in research outcomes and subsequent federal investment in research in Illinois. policies, including, but not limited to, directions for the provision of clear and coordinated services and supports to persons and families living with Alzheimer's and related disorders and strategies to address any identified gaps in services.
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