(a) Subject to appropriation, the Department of Public Health, in conjunction with experts in the field of Duchenne muscular dystrophy, shall develop mandatory protocols and best practices for providing the necessary medical guidance for Duchenne muscular dystrophy in Illinois. (b) To raise awareness about Duchenne muscular dystrophy, the protocols and best practices developed by the Department under subsection (a): (1) shall be published on a designated and publicly accessible webpage; (2) shall include up-to-date information about Duchenne muscular dystrophy; (3) shall reference peer-reviewed scientific research articles; (4) shall incorporate guidance and recommendations from the National Institutes of Health, and any other persons or entities determined by the Department to have particular expertise in Duchenne muscular dystrophy; and (5) shall be distributed to physicians, other health care professionals and providers, and persons subject to Duchenne muscular dystrophy. (c) The Department shall prepare a report of all efforts undertaken by the Department under this Section. The report shall be posted on the Department's website and distributed to local health departments and to any other facilities as determined by the Department. accessible webpage; Duchenne muscular dystrophy; articles; from the National Institutes of Health, and any other persons or entities determined by the Department to have particular expertise in Duchenne muscular dystrophy; and care professionals and providers, and persons subject to Duchenne muscular dystrophy.
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